Before you view our site, let us tell you what we have learned. Together we learned that the risk for this is much greater for women then men, due to our possession of two X chromosomes. Whereas men have one. We also learned how incredibly lucky we are to have been able to live with out this.
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The more we know about this behavioral disorder, the more we can help and accommodate those affected by it. Below is a website that gives inside stories to the lives of the victims of this cruel syndrome.
http://www.graceforrett.com/rett-syndrome/r168x/hi-im-holly-b/
http://www.graceforrett.com/rett-syndrome/r168x/hi-im-holly-b/